Social and Emotional Considerations
Caring for a child with SNI includes tending to the emotional and psychological needs of your child, yourself, and your family. Here you will find ideas and tools for navigating the present, planning for the future, and making space for the emotions that come with parenting a child with significant needs.
Each child and family is unique, and you may find yourself grappling with these considerations earlier or later in the arc of your child’s life.
Adapting to Diagnosis
Collecting information, care and support as issues emerge for your child and your journey begins.
Building Strengths
Maximizing your child’s core skills and family resiliency to develop a foundation for the journey.
Adjusting to Changes
Making decisions and adapting to your child’s evolving baseline throughout the journey.
Navigating Decline
Re-orienting goals and finding support alongside declines in your child’s condition, preparing you for the end of your child’s journey.
Goals of Care
Anticipatory Grief
Communicating the Diagnosis
Guilt and Regret
Partnership and Marriage
Family Planning
Caregiver Well-being
Supporting the Siblings
Siblings at End of Life
Extended Family and Friends
Spirituality and Faith
Financial Planning
Work
Out-of-Home Placement
Transition to Adulthood
Advance Care Planning and End of Life