Your child’s primary physician will help assess for bladder infections or kidney stones. A urologist can assess bladder function. A nephrologist may be consulted for kidney issues. A pediatric pharmacist can screen for drug interactions and medication side effects. Complex care and palliative care clinicians can think through practical strategies if there are chronic problems with bladder function and risk for infections and kidney stones.
Urology
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Children with SNI are at increased risk for, and commonly experience, altered bladder function because the impaired central nervous system disrupts communication between the brain and bladder muscles. A child may experience incontinence, which is an inability to control the release of urine from the bladder. The impaired nervous system may also cause children with SNI to retain or not completely empty urine from the bladder. This problem may put them at greater risk for urinary tract infections, bladder infections, and/or kidney stones.
Adapting to Diagnosis
Collecting information, care and support as issues emerge for your child and your journey begins.
Building Strengths
Maximizing your child’s core skills and family resiliency to develop a foundation for the journey.
Adjusting to Changes
Making decisions and adapting to your child’s evolving baseline throughout the journey.
Navigating Decline
Re-orienting goals and finding support alongside declines in your child’s condition, preparing you for the end of your child’s journey.